We have collated a range of informative websites for neonatal professionals. You can explore these by expanding the sections below:
Together for Short Lives
Together for Short Lives support professionals caring for babies with life-limiting conditions, and their families.
https://www.togetherforshortlives.org.uk/
Child and Young People Advance Care Plan (CYPACP)
The CYPACP is a document designed to capture advance care planning discussions between professionals, patients and their families. It aims to aid discussions giving prompt of important issues to consider and space and structure to enable documentation of these.
Bereavement Training International
Bereavement Training International provide specialist training for professionals to ensure families receive the best possible support and care following the death of a baby or child.
https://bereavementtraining.com/
Multi Faith Resource Working Document
Hampshire and Isle of Wight have produced a multi faith resource document to provide further information to professionals.
National Neonatal Audit Programme (NNAP) dashboard
The NNAP interactive dashboard shows data against 10 performance metrics. This is updated on a quarterly basis.
https://www.rcpch.ac.uk/resources/nnap-data-dashboard
What is the National Neonatal Audit Programme? Watch this short film.
National Neonatal Audit Programme (NNAP) Online
NNAP aims to helps neonatal units improve care for babies and their families by identifying areas for quality improvement in relation to the delivery and outcomes of care. NNAP Online is a reporting tool which provides access to audit results.
https://nnap.rcpch.ac.uk/
Neonatal Data Analysis Unit (NDAU)
NDAU was founded to support the management and development of the National Neonatal Research Database (NNRD), and related research.
https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/
Family Integrated Care report and strategy for TVW
The Thames Valley and Wessex Neonatal ODN Family Integrated Care report and strategy for 2025-2028.
Find-the-FiCare© educational resource
The Thames Valley and Wessex Neonatal ODN have created a Find-the-FiCare tool to help staff identify Family Integrated Care in their daily work on neonatal units.
KSS Neonatal ODN Care Co-ordinator Scoping Report
The KSS Neonatal ODN Care Co-ordinator Scoping report can be read here.
Wessex Maternity Academy
The Wessex Maternity Academy aims to reduce education variations and improve the care for mothers and babies.
https://www.wessexmaternityacademy.org/
South East Maternity Clinical Network
The SE Maternity Clinical Network aim to create improvement through clinical leadership, strategic focus and large-scale change and transformation.
https://www.southeastclinicalnetworks.nhs.uk/our-networks/maternity/
Baby steps: Our neonatal journey cards for parents
Find out more about the ‘Baby Steps: Our neonatal journey’ cards for parents and families on our journey card page.
https://neonatalnetworkssoutheast.nhs.uk/parents-families/neonatal-journey-cards/
Consent
The parent leaflet below gives further details on the types of consent which professionals can share with families for their information.
Click here to view consent parent leaflet
Local charities, support and resources
For information relating to local support and resources for families please visit our Unit Information page, click on your unit and follow the link to your unit’s padlet.
https://neonatalnetworkssoutheast.nhs.uk/unit-information/
National charities, support and resources
The psychology team in the Oxford Neonatal Intensive Care Unit have created a padlet full of national resources and organisations that professionals can signpost to families when needed.
https://padlet.com/neonatalpsychology2/national-resources-and-organisations-mq44k6fjrwgdjdhz
Neonatal Care Leave and Pay
Neonatal Care Leave and Pay gives parents the opportunity to extend their parental leave by one week for every full week that their baby is receiving hospital care if:
- Their baby is admitted for neonatal care within 28 days of birth
- The treatment is for a continuous period of 7 days or more
Further information can be found at www.bliss.org.uk. Download a template letter to give to eligible parents here.
Parent resources
On our parent resources page there are some useful resources for parents. Many of these are linked to from the journey cards available within our units.
https://neonatalnetworkssoutheast.nhs.uk/parents-families/parent-resources/
Preterm birth and paediatric intensive care infographics
The National Institute for Health and Care Research has designed infographics to show the results of their recent research into preterm infants being admitted to paediatric intensive care. Click on the link below to view these infographics that you can share with parents.
Health Innovation Wessex video – What to expect when your baby is born prematurely
Preterm optimisation video from Health Innovation Oxford and Thames Valley
British Association of Perinatal Medicine (BAPM)
BAPM improves standards of perinatal care by supporting those involved to optimise their skills and knowledge, promote high quality, safe and innovative practice, encourage research, and speak out for the needs of babies and their families.
Royal College of Paediatrics and Child Health (RCPCH)
The RCPCH is a membership body for paediatricians in the UK and around the world. They focus on postgraduate medical education, professional standards, research and policy.
Paediatric Innovation, Education and Research (PIER) Network
PIER is a collaboration of multidisciplinary health professionals working to improve the care of children and young people in the South of England through development of regional guidance, delivery of educational initiatives and paediatric research.
Neonatal Nurses Association (NNA)
The NNA promote neonatal nursing for the benefit of premature and sick newborns and their families.
Florence Nightingale Foundation (FNF)
The FNF focus on improving health, clinical outcomes and patient experience, through building nursing and midwifery leadership capacity and capability.
e-Learning for Health
Health and wellbeing resources for staff working in maternity and neonatal services.
https://www.e-lfh.org.uk/programmes/maternity-and-neonatal-resource-hub/#wellbeing
Transitional Care Report
The South East Neonatal Networks have written a Transitional Care Report to present a scoping review of transitional care services across Thames Valley & Wessex and Kent, Surrey & Sussex.
Southampton Oxford Neonatal Transport
SONeT is a collaboration between Oxford and Southampton neonatal intensive care units. It provides emergency neonatal retrievals, planned transfers and repatriations in TVW Neonatal ODN.
Workforce Strategy for TVW
The Thames Valley and Wessex strategy for the multi-disciplinary neonatal workforce for 2024-2029.
Education Strategy for TVW
The Thames Valley and Wessex strategy for the education and training of the multi-disciplinary neonatal workforce for 2024-2029.
Find-the-FiCare© educational resource
The Thames Valley and Wessex Neonatal ODN have created a Find-the-FiCare tool to help staff identify FiCare in their daily work on neonatal units.