Who we are
Welcome to the TVW Parent Advisory Group (PAG)
We are a group of parents/carers, and their families, who have experienced neonatal care in one (or more) of the 14 neonatal units across the Thames Valley & Wessex Neonatal Network, at some point in our lives.
Meet Emma the PAG Chair
The group meet four times a year online and aim to improve the experience of families within neonatal care services. This is part of the Neonatal Critical Care Review.
Meet some of the parents who have supported the PAG
What we do
Our focus is on helping to improve the experiences of families on their journey through neonatal services now and in the future. We are currently involved with the areas of work below:
- Mental health support
- Trauma-informed care
- Repatriation of babies to a unit closer to home
- Parent involvement in ward rounds
- Implementation of Family Integrated Care on the units
- Neonatal journey cards
- Bereavement/Palliative Care
- Outreach and transitional care
We’re proud of our work on these projects:
- V-create Moving Closer to Home animation
- Its Ok to not be OK poster campaign
- Our upcoming V-Create video for parents to send to family, friends and employers to explain what it’s like arriving in a neonatal unit
Transfer Closer to Home: The neonatal repatriation of your baby
Watch our short animation:
You are not alone
On World Prematurity Day we recognised and celebrated all neonatal babies and their families wherever they were on their neonatal journeys.
Join the PAG
Get involved
As a neonatal parent you can get involved in the following ways:
Join the PAG
If you’re interested in joining our group, we’d love to hear from you.
Share your experiences:
- Meet with our Team at the cot side when your baby is still in the hospital
- Be visited by our team at your home or at a venue of your choice after discharge
- Provide feedback by telephone 07786 086078, WhatsApp or email england.tv-w-neonatalnetwork@nhs.net
We would especially like to hear your thoughts for any improvements or changes that you would like to see.
Follow us and share our opportunities to get involved
Terms of Reference
Being a member of the PAG is voluntary and you are under no obligation to remain part of the group or attend meetings. You can be involved as much or as little as you feel comfortable.
The Network will reimburse parent members of the PAG for reasonable expenses incurred during their activities, as a member of the group (those that are registered). This will include travel and parking costs. Children are always welcome to our meetings online or in person.
Please find our Terms of Reference here. We also have coproduced rules of engagement where we agree to respect everyone’s views and give everyone equal opportunities to be involved in whatever way they feel comfortable to work with us.
